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ryans Do your prism glasses help with the iPhone XS Max at all?
Yeah, the prism glasses do help for sure. Unfortunately, not by enough to make OLED phones okay for daily use though. I don't think I'm going to wear them for the EEG, I want to make sure I get symptoms (Never thought I'd say that, lol)
ryans I will note that EEG is sometimes abnormal even with "normal" patients. But I would be very cautious about taking any kind of anti-epileptic drug if you get an abnormal EEG; they can have brutal side-effects (and apparently a minority of patients can have permanent ones). I don't know what other non-surgical treatments are available. But lots of Doctors hand out pills like candy.
Thanks for the heads-up. Yeah, I don't think I'd be comfortable going on anti-epileptic drugs on a long-term basis, especially if there are nasty side effects.
ryans If you are able to get a doctor saying you have abnormal EEG while looking at the XS Max, that could be something to take to Apple.
100%. If the doctors give me any kind of neurological diagnosis, I'm definitely going to call the accessibility department back and supplement my other info.
ryans By trade, a Neuro-ophthalmologist should be the most "helpful" in treating our condition, but a few folks on here have found them not helpful. I've yet to try one.
I asked my ophthalmologist about it - the official response from the neuro-opthalmologist that she referred me to was:
"After thoroughly reviewing your file, I do not feel that I have much to offer you for your sensitivity to flicker. I suggest that you reverse the contrast on the screen to see if this is helpful. I don't know if you have already tried this before. I feel that there is a low likelihood that a visit with me would add anything more, but I am willing to see you if you'd like to come in."
My current plan is to get an EEG and then see a neuro-opthalmologist. If nothing comes of that, then I'll probably get the MRI. From there, I have no idea ️
Is anyone else planning on doing an EEG or MRI? Would be useful to compare our results and see if there's anything in common.