xelaos I guess you have tried covering one eye for some sometime?
I have tried this in the past and it did not help. I am now working from home and can do this without embarrassment so I did it again after reading this in November. I did it for 3-4 days and it did not help.
plymn10 Neurolens had a money back guarantee, so I bit the bullet. First couple days I was slightly nauseated because I've never worn glasses before. Day 3 and on it's been heaven.
Really?! I had looked into Neurolens a year ago or so but couldn't find anyone on here who had tried it. I tried a prism patch a while back with no success but I might be willing to give these a shot. I wear glasses all waking hours so I would not even take them off except to shower or go to bed. The orthoptic therapy I did didn't help but there is another kind I would consider trying. I just get SO exhausted seeking help without success but since I moved to a larger area, there could be more options to try. Also, everything is so expensive.
As a general update, I saw a neurologist last month and he said (as expected) he did not know what my problem could be but suggested an EEG and a trial of an anti-seizure or anti-migraine medication. Since these are things I have not tried, I am willing to do so. I did the EEG and (as expected) it came back normal. Good, I guess, but also frustrating as it perpetuates the fact that this illness is such a mystery. I have an appointment with him next week to start an anti-seizure drug (probably Lamotrigine). I will report back the results after I give it a fair amount of time.
If the meds he suggests do not help (and I anticipate that they won't), I may look into Neurolens again and the other type of vision therapy. If those don't help, I will just continue to try to learn to live with this horrible illness.