Infinite Irrational fear of seizures(?) - There are moments where my brain feels like a mush, the feeling intensifies and I feel like I'm about to get a seizure. This happens frequently when former symptoms are present. I could describe this feeling by immense amount of pressure in my head that I can't stop? Perhaps it's blood rushing to my brain? I really don't want to make irrational diagnosis here. I have no idea.

So obviously I am not you, and my situation may be different, but I have been seen by countless neurologists, ophthalmologists, and nuero-ophthalmologists in various specialty centers across 7 different states at this point, and one thing I have heard from every single one is that while our condition is painful, and real, it does not present any physical or neurological risk or stroke, seizure, or anything else. It's just discomfort. So take that for what it is worth.

      ensete

      I hope that's true. I felt great sense of comfort reading this.

          4 months later

          Infinite

          Wonder how you've been Infinite? Any luck?

          I found this forum thread talking about vision therapy / orthoptics in Dublin, Ireland. It might be useful to take a visit.

            I can relate to some of this, earlier today I posted some of my story, under the 'My possible solution….' thread.

            I have heard there is a nerve that goes down the spine from the head that can cause migraines when stressed, e.g. with whiplash victims.

            I had some brainfog develop a few years ago, I started taking saturated fats, which help the brain, my fog is getting better, (I overhauled my diet, and went totally healthy too).

            I used to get 'auras' too, if thats what you meant by feeling of seizures. These stopped once i used the tinted glasses, see my original post, to see what i mean.

            a month later

            Infinite I am on the lower end of testosterone as well.

            Got mine checked and it is LOW. Mine is 160 ng/dL, where lab reference normal is 250 ng/dL - 827 ng/dL. I am mid to late 20's and a doctor told me even 250 is too low for my age! Going to see a doctor about other testing and treatment.

            Am not sure it is related to our screen issue or not. I know that migraines are much more common in women and they suspect it may be related to hormones (but this is just a theory). This article claims that testosterone might help prevent headaches by "reducing swelling in the brain", "increasing levels of serotonin" and "stopping cortical spreading depression ". And an actual study here.

            If I am given treatment, I will report back with my results as it relates to screens.

            Anyone else get their testosterone checked? Here in USA, you can get it tested without a Doctor's order by using something like Quest Labs.

                Infinite Rotating my neck feels like grinding gears(or sand/tiny stones in my neck)

                I have that exact thing. My diagnosis is "cervical spondylosis" which was diagnosed in a rheumatology clinic.

                Infinite I feel like I forget what I want to say, how I phrase my sentences and difficulty thinking in general.

                I used to have that, years ago. Was caused by stopping a bunch of meds cold turkey back in 2013. Do you have anything like that in your history?

                    ryans Mine is low for a woman.
                    I also have migraines, but they have zero connection to eyestrain (If there was a connection I would be dead right now 🙂)

                    But for my personal case I strongly believe that something in light damages my eyes: I tested looking on the bad phone next to the mirror, I see little blood vessels immediately appearing, after 2 seconds.
                    If testosterone makes some impact here, it could only make this damage less painful, but not prevent it.

                    P.S. In Eastern Europe anything could be checked without any doctors orders; so I went to complete ophthalmological check-up with a lot of tests and my eyes are absolutely, perfectly healthy.
                    I went there in sunglasses though, cause after the phone I couldn't handle even a moody weather.

                        Mrak0020

                        But for my personal case I strongly believe that something in light damages my eyes: I tested looking on the bad phone next to the mirror, I see little blood vessels immediately appearing, after 2 seconds.

                        It could happen because of quick and too strong muscle activation. So the light in general does nothing to years eye but act as a trigger for your muscles to react.

                            xelaos who knows.
                            I still tend to blame the light, cause muscle activation cannot give me any symptoms of extra light sensitivity (to irrational levels). The ophthalmologist who ran all the tests also do not know the reason; she said she have more patients with similar problems.
                            I have never had in my life any, even slightest, light sensitivity of any kind.
                            (just to give a context, I suffer only with modern smartphones)

                                xelaos yep
                                Just a subjective feeling that a closed eye better reacts to light afterwards. But everything else, including muscle pain, is present no matter what on both eyes.
                                I have no bvd based on the string test posted here, and I already wrote that the smartphone breaks my vergence immediately, it is the same with one eye patched. It takes time to "repair" it with exercises.

                                  2 months later

                                  Hey all! I will respond to the replies soon. I had to take a little break from the forum since reading posts and trying different things without a solution became a little frustrating.

                                    Lads could someone point me to the BVD string test please?

                                      3 months later

                                      Hey there! Experiencing the exact same symptoms and wanted to see if any progress was made here 🙂

                                      dev