tfouto

Not sure tbh, I’ll know more after my BVD appointment next week. The encouraging thing about BVD is that it seems that there are several promising treatment options (prism lenses, vision therapy, etc), I don’t know if lenses are going to be required 24/7 or if it can be addressed in other ways.

A general question from me:

If I get an eyepatch (pirate style), will I be able to keep my patched eye open, without the eyepatch touching my eye (irritating it via touch)? I guess eyepatches are "convex", meaning they don't actually touch the eye's surface?

    Update on my situation

    I am still patching to this day. So I can say with certainty, for me at least, that patching can offer relief for at least several months

    I routinely test without a patch to see if there are any changes being made from patching that may let me one day not need to wear one, and the results have been positive and frustrating at the same time. Prior to patching, I couldn't go more than a second or two without feeling symptoms. After about 7 months of patching, I can sometime go up to a few minutes now with no symptoms. It is agonizingly slow progress, but it is progress. It is also unpredictable, there are times to this day where on some days I still can't stand even a second or two of a bad computer display. However, I have noticed significant improvement with my sensitivity to LED light bulbs, oddly enough. I can spend hours in a room with them and be just fine. That was an incredible discovery for me.

    For specifics, I patch during work hours, so around 8 hours a day, but I take frequent breaks and work on non computer related tasks whenever I can, so I would say in an average day I actually stare at a screen with a patch on maybe 1-2 hours.

    I have presented this information to several opticians and vision specialists, and as suspected they were all baffled and useless in explaining what was going on. they agreed that since the patch helps it has to be something to do with my binocular vision, but what that was they had no clue. They recommended adding prism to some lenses, so I had some custom lenses made up and they didn't help at all. another $150 down the tubes.

    Anyone have a good source on firm, paper eye patches? I got some from my eye doctor, but all I can find are the soft padded ones which suck since they don't hold a concave shape and press on your eye.

      ensete I didn't quite understand your patching time. Do you patch 8 hours a day? Do you use the patch even without using any screen? Do you change both eyes, or just one?

        tfouto ensete I didn't quite understand your patching time. Do you patch 8 hours a day?

        No, i only path when using my work computer. So on average 1-2 hours a day. During my 8 hour work day I take frequent breaks and try to do as much away from the computer as possible.

        Do you use the patch even without using any screen?

        No, I only wear the patch when using my work setup. It is the only setup I cannot change toa setup that does not trigger my symptoms. I am still of the belief that the #1 focus should always be trigger avoidance, and if you run into a situation you simply cannot avoid, then you look at other options.

        Do you change both eyes, or just one?

        Patching my right eye causes significantly more relief than patching the left, so I always patch the right eye.

        How safe is it to patch your eye for hours everyday?

        I'm under the impression that consensus says 4 hours per day is safe. Is that so?

          logixoul I'm under the impression that consensus says 4 hours per day is safe. Is that so?

          Says who?

            I saw a BVD specialist yesterday, here's the summary:

            • Diagnosed with Convergence insuffiency (Exophoria), Vertical heterophoria (Spasm of accomodation), and Paresis of accomodation (General binocular vision dysfunction)

            • Basically, my eyes are constantly working in overdrive to keep my vision as clear as possible, and this is what causes my symptoms. For example, she had me look at a chart that measures convergence. The normal range is between 2 and 6, my number for close range was 16 (!), and long range was 24 (!!). The flickering screens are apparently putting extra strain on my system, which is why they're so hard to deal with.

            • The specialist was not surprised at all that the eyepatch helped, since I clearly have massive issues with binocular vision. This suggests to me that if you experience relief with the eyepatch, you should definitely look into getting checked for BVD. It may not end up being the answer for your particular situation, but it is absolutely a lead worth looking into.

            • She was also not surprised that my new lenses help, since they at least partially address my eye misalignments. She recommended to keep wearing them to see if my symptoms keep improving (I'd say these lenses reduce the symptoms by 60-70% as of right now, hoping to get that number up as much as possible)

            • The plan for now is to do regular vison therapy with her & try Neurolens again (My last attempt w/ Neurolens didn't help with flicker at all, because the prescription didn't account for the totality of my misalignments. Hoping for a better result this time.)

            • I specifically asked what she thought about my prognosis and if she felt positive about treating or curing this issue. She said that she does feel positive, though I'll probably need lenses permanently and it'll take a good deal of visual therapy.

            Overall, I'm actually hopeful for the first time in literally years. I can't thank you guys enough for suggesting the eyepatch, it's an incredible lead and I'd highly suggest anyone who feels relief from it to get thoroughly checked for BVD or any kind of eye misalignments. You could literally be one pair of prism lenses away from some sort of relief 😃

              bkdo
              Hi bkdo, it's great to read some kind of success story here. Did you get a new prescription acouting your vertical misaligment?

              • bkdo replied to this.

                Dominic

                Yes, I received this new prescription from my optometrist a few weeks ago when I was first diagnosed with the double eye misalignment:

                Sphere OD +0.50

                Sphere OS +0.25

                H Prism OD 1.25 Bl

                H Prism OS 1.25 Bl

                V Prism OD 0.75 BD

                V Prism OS 0.75 BU

                I'm currently wearing lenses with this prescription & have about a 60-70% reduction in symptoms. My main symptom now is eye fatigue & slight dizziness after 2-3 hours of using a flickering screen, but it dissipates much faster than before. It's much better, but not perfect yet.

                I also got a new Neurolens prescription from the BVD specialist that has vertical prism + new horizontal prism that was worked out by my optometrist & BVD specialist together. I'll definitely post updates if the new Neurolenses provide even more relief.

                  bkdo Awesome!

                  Btw have you ever had diplopia (double vision)? Asking because I read (in an article in my native language) that prism glasses are prescribed only when your latent strabismus causes diplopia.

                    logixoul

                    Yep, he recommended that I not use the patch for more than 4 hours each day & only wear it when using problematic screens. For anyone who wants to use the patch on a daily basis, I'd highly recommend speaking with your optometrist so they can give you accurate advice on your situation.

                    logixoul

                    Yes, I've definitely had double vision. It happens when my eyes are extremely fatigued, and it usually manifests as text being vertically doubled slightly. No double vision whatsoever since getting these prism lenses though, thankfully.

                      bkdo Ah, interesting! I thought that all prism lenses do is "slowly train your eyes to look in the proper direction". And from your experience it turns out they directly compensate for some aspect of your vision. (since you say they fixed your double vision directly). That's so cool!

                        Here is the scary story to share about my One Eye Test.
                        I stated previously that looking with one eye doesn't help and the problem remains.
                        Well, I found out that while it doesn't help me, it clearly prevents my closed eye to take a damage. If I look only with one eye, that will be the eye that gets red and gets an new visible blood vessels on the surface, that gets light sensitivity, that huts on the surface and where some muscles twitch.
                        Be careful. As my problem is not connected to BVD, those two cases should be differentiated. Track your eye health.

                        • bkdo replied to this.

                          logixoul

                          The interesting thing, according to my optometrist, is that prism lenses may not actually be directly fixing anything related to the flicker. For example, the prism lenses are be helping w/ flicker, but that could simply be because my eyes are less strained overall and can more easily deal w/ flicker. This has definitely lined up with my experience - I've had the double vision come back after 4-6 hours of screen time, which makes me think the glasses didn't directly solve the issue.

                          I think this is actually good news, because it means we can try to find solutions for the underlying problem (For me, it's BVD), and still see positive results with flicker sensitivity.

                          Mrak0020

                          I'm sorry to hear that, those symptoms sound rough to deal with. Have you seen an ophthalmologist?

                            bkdo Sure, and by all the tests I am completely fine, and there's no reasonable explanation of what's going on

                            6 days later

                            So I received my eyepatch 2 days ago and have been using it for all screens since (on my "bad" eye). Seems to give me a massive improvement. ("seems" because it may be placebo, and because it's too early to tell for sure).

                            I went to a BVD specialist, they diagnosed me with astigmatism but no BVD.

                            Interestingly, I have the exact same symptom as @bkdo ("text getting slightly vertically doubled when my eyes are very fatigued") that he corrected via prism lenses, but I don't have BVD so no prism lenses for me.

                            Here's my new theory for my screen strain and eye patching:

                            • The astigmatism (which is much stronger in my left eye) leads to left-eye fatigue because the eye is constantly trying unsuccessfully to focus properly. The wikipedia page for astigmatism says: "symptoms can include eyestrain, headaches, and trouble driving at night")
                            • The eye patch lets that left eye not try to focus at all, which fixes the above.
                            • Still not sure why the problem happens only with screens

                            Planning to go to my personal ophthalmologist for a prescription for astigmatism glasses in about a week (the BVD specialist wouldn't give me one).

                              logixoul

                              This is interesting, I haven’t had any double vision what i have notice. For me covering one eye have changed my binocular vision over time so now I can use all screens with both eyes open. And because it have worked with one eye, I have put my problem in the BVD category.

                              So in my point of view, if it makes a massive improvement with covering one eye, it sounds like BVD.

                                dev