Just stumbled upon this forum, and I've been self-managing my struggles for years. I'm seeing lots of terminology I'm not familiar with, which makes me think the folks here might have some useful advice I haven't thought of.

About me:

I struggle with eyestrain, headaches, migraines, and overstimulation. I'm very sensitive to visibly flashing lights and strobing colours, as well as bright lights in general. I have autism, and I had an EEG done in 2019 testing for epilepsy which came back "abnormal". It didn't match the expected results for epilepsy, though I react negatively to stimuli that would cause seizures in someone with photosensitive epilepsy. As far as I know, I haven't had a seizure- the specialist basically said "based on your results, maybe you'll have seizures later in life, maybe you won't, good luck". I have had my vision tested a few times- it's fine, but not quite 20/20.

I manage all of this in a variety of ways:

  • All my screens are tinted orange- I've been doing this with a variety of software for about a decade. On my PC I use gammastep set to 2000 (day) and 1600 (night); it's similar to using f.lux or any other screen tint software. As well as helping with eyestrain, I find text in general is easier to read on an orange background.
  • As well as this, I use my devices in greyscale mode to help with the overstimulation-induced headaches. On Linux I use a custom shader for my compositor, and on Android or other OSes I use their built in options.
  • I use very "minimal" software to avoid getting overwhelmed, and avoid anything that's very flashy or fast paced.
  • I use my devices at low brightness, and use light mode so that I can set the brightness even lower and still be able to read what's on the screen. I used to use dark mode, but found that gave me more eyestrain than a dimmer screen in light mode.

My preferred device is my thinkpad X270- it has a TFT panel, and has a fairly low minimum brightness, and even with colours enabled they are more muted than my other screens. I'll use it at minimum brightness in most settings, but when there's lots of natural light around I'll use it closer to 5-7%. I use my desktop monitor less, as it's screen is brighter. I don't personally get worse issues with a particular screen beyond it's brightness level, which leads me to believe I'm not sensitive to PWM. (if that's the flickering I see in camera recordings of my screen, my laptop definitely has it)

With my current setup, I can use my laptop as long as I'd like if I'm careful. Video games are often too stimulating for me, but otherwise it's usable for web browsing on "trusted" websites. Unexpected flashy animations give me a lot of trouble, so I try to stick to sites I trust when my symptoms are worse. It's not perfectly comfortable, but I make do.

I have a lot of struggles with my phone, a Samsung S10e- it's AMOLED and all 3rd party screen tints are incompatible with greyscale mode, and also turn on the pitch black pixels. The built in screen tint (which works with greyscale and doesn't turn on black pixels) is too mild for me, and gives me headachces fairly quickly. If I were to use it all day I'd give myself a migraine.

If anyone has suggestions of things to try, I'm all ears. I've been figuring this all out on my own, and when discussing with professionals the most advice I get is "sounds like that's your autism, you just have to get used to it". Also, I get by on a very low income, so "just buy an eink monitor" isn't helpful advice unless you're paying for it 😉 (if you do have any sort of product suggestions, I'm located in Australia)

Thank you for your help 🙂

It sounds like you are already doing a lot and have progressed far on your own. I have two low cost suggestions to try:

I found exercise to be a very effective way of speeding up recovery of headaches and migraines. I can't say for certain why, but I have read that exercise accelerates the growth of new brain cells, which would help migraine recovery. Newer research indicates that migraines are a kind of emergency stop and recovery mode for ours brains when damage or harm is occurring.

The second is food, I think I am quite isolated in this on the forum, but I find what I eat can have a big impact on the severity of my symptoms. The biggest food trigger for me is cooking oils, some worse than others. I can view the screen I am using now without discomfort, however if I were to consume sunflower oil it would become quite painful for several days. Given that food intolerances are more common among autistic people perhaps this is worth exploring.

    5 months later

    Seagull Thanks for answering! Do you have a particular exercise routine? Also, if it wouldn't take a lot of your time, can you point me to some research on migraines? I get them quite often and would like to know a way to treat them.

    dev