• Introduction
  • Blue light photophobia, eyestrain, muscle spasms, pain, twitching

Gurm

Hey, as explainend in my "your health" thread it's the same at my side.

First of all there was the bruxismn and nearly one year later the eyestrain odyssey began without and end till now.

  • KM replied to this.
  • Blair likes this.

    Gurm

    or a chronical infection.

    Trying out some new meds. It's called "infecto complex 1" and should help to fight against such an unknown infection or inflammation.

    I find it hard to believe that I'd have an unknown infection for a decade... infections either resolve or get worse.

      Gurm

      I could also be wrong with my statement.
      I'Ve explainend it in more detail in the health thread. Normal blood tests show that I'm at perfect health, however if you look closer and do further blood tests some markers show that my immune system is permanently running and fighting against something. Some guys mentionend a reactivated Epstein-Barr-Virus and also at my side there was the assumption that this could be a root cause of my problem. However it is not clear and therefore I try out my mentionend micro immune therapy.
      However the only thing which is clear is, that something is going on and that we are far away from common health and eye problems so we also have to do uncommon tests and therapys.

        Blair You should try Choline enriched foods. Or maybe suplements. But i prefer not to take suplements.

        "Choline performs a chemical transformation, converting the harmful homocysteine into the helpful chemical methionine."

        https://www.sciencedaily.com/releases/2019/01/190108084424.htm

        https://www.optimallivingdynamics.com/blog/16-proven-ways-to-effectively-lower-homocysteine

        Also betaine is also good.

        "Probably the most extensively researched benefit of betaine? It’s used to convert homocysteine in the blood to methionine."

        https://draxe.com/what-is-betaine/

        Also Cod:

        "Cod, specifically, promotes cardiovascular health because it is a good source of blood-thinning omega-3 fatty acids as well as an excellent source of vitamin B12 and a good source of vitamin B6, both of which are needed to keep homocysteine levels low. "

        http://www.whfoods.com/genpage.php?tname=foodspice&dbid=133

          reaganry

          Indeed- I'm feeling hopeful about the production monitor being something I may be able to tolerate long enough to (gasp!).... watch something! Looking forward to getting the technical specs of the ones they use on set. Then promptly buying one, assuming there's a good return policy on it 😉

          The quinine I take is an alcohol free tincture (Secrets of the Tribe brand). The label says 'Organic Quinine (cinchona officianalis) dried bark. So I'm thinking it's not quite the same as the Qualaquin sulfate capsules. I'm hoping not, because I take 400-800 mg of magnesium glycinate per day. I only use the quinine tincture when I'm having twitching, which is infrequent (every few months, for a few days to a week).

          It's weird that most of you guys aren't bothered by florescents, yet I am extremely sensitive to them. Are TV's insanely bright to most of you as well? For me, the brightness is practically blinding. I can only look at a television for a few seconds. So it's the brightness, followed by the strain, followed by the muscle pain. I'm also wondering if anyone else here has had muscle spasms in the eyelid due to eyestrain. I have the pain almost daily, to varying degrees depending on how good I've been about staying off my phone.

          It's interesting to me you brought up the casein thing. I don't know if that was random or in response to something I said. (It's hard for me to go back over everything that has been written, for obvious reasons) so forgive me if I repeat myself or overlook things. Anyway, I'm sensitive to gluten and casein, but I can also tolerate goat/sheep milk. Grass fed butter isn't a problem for me either, as it only contains A1 casein in microscopic amounts. I'm currently off all dairy except grass fed ghee because I'm doing this low inflammation diet.

          Just did the color blindness test. It was normal. Sigh. Always hoping for that "a-ha!" moment...

            Blair It's weird that most of you guys aren't bothered by florescents.

            I was. In fact back in September 2011 (when I first noticed this issue) I associated it with lights instead of screens.

            MagnuM

            I'd be interested to see if the 3GS works for me, if I can find one online and it's returnable. What phone are you currently using?

            The monitors they have at work are actually flat screens, not boxy at all. The picture is very nice, not too bright. I promise I'll let you guys know exactly what they are as soon as I find out. I never look at them for more than a few minutes, but that's a few minutes more than I can tolerate a "regular" tv, so I'm hopeful it may be the workaround for me and for some of you as well! 🙂

            I did try watching an old school box tv when I was at at Irlen center doing testing. It still bothered my eyes/brain. And every color combination of Irlen lenses proved unhelpful.

              Blair Wow, the 3GS is really old. May not be able to run too much these days aside from some basic Safari web browsing and SMS text messages. I used the iPhone 5, which gave me some mild symptoms, but not too bad at low brightness with NightShift enabled. Phones are usually used for quick checks versus long sessions anyway. I'm using the iPhone 6S+ currently with similar issues as the 5, but I think the larger screen helps. I have Nightshift enabled at all times on it, and the brightness is low, and I haven't had too many problems I link directly to the phone's display. Thankfully it's a non-factor for me in most cases.

              It would be helpful to find out what monitors at work are tolerable for you. If needed, maybe ask some techie there if he can even get model numbers for you too! Getting the model numbers would get you all the technical specs that go with it. You might be able to find a pattern of "eye safe displays"

              The first ophthalmologist I saw back in late 2013 suggested doing an Irlen Center screening, which I did back in April 2014 if I remember correctly. After a couple hour session, they did suggest I had Irlen Syndrome to some degree. When I returned to try different lenses though, I couldn't seem to find any lenses that helped to a significant degree over placebo, mind you, I was doing my tests against the printed word instead of the problematic displays that I'm not able to handle.

              Irlen Syndrome is a bit controversial, but I remember the vice president's son of our company worked as a summer student once and always wore these blue-tinted glasses. I spoke to the VP once and he said the glasses were essentially life-changing for him, because he had a lot of trouble in school with reading and such, and the tinted glasses were the smoking gun.

              The theory behind Irlen Syndrome is over-sensitivity of the optic nerve from specific wavelengths of light. The tinted glasses try to filter out that "offensive" light wavelength. That's at least how it was described to me.

              Harrison further blood tests some markers show that my immune system is permanently running and fighting against something

              Could this be auto-immune, e.g., it's attacking healthy cells (maybe in the eyes or brain)?

                Blair I'm also wondering if anyone else here has had muscle spasms in the eyelid due to eyestrain.

                I do have that with certain light sources, but the twitching is below the eye.

                A lot of us were/are sensitive to fluorescents, especially the newer "high intensity" "full spectrum" variety. But the bigger problem is the screens. With a good screen and a visor on my head to block direct view of the offensive lights, I can exist quite comfortably for an entire workday under those lights. When I first had the symptoms I thought the lights were the trigger and literally worked out of a closet in my office for a couple months. In the end, they were only exacerbating the existing issue.

                  Gurm

                  What do you Mean with „visor“ ?

                  We have Dell p2213 Monitors at work — that are okay with Blue blocking Glasses , but the bright white lights fluorecents Kills me 😩

                  Gurm

                  There are actually a few scenarios where infection does persist chronically. The most widespread is Toxoplasmosis, its an intracellular parasite that favours brain tissue. In humans, once contracted it persists for life. Around 50% of the world's population is infected with this parasite, those it varies a lot by region.

                  ryans

                  Yeah. The problemt could be an auto-immune, but it is not sure. Like the Chronic fatigue syndrome where doctors suppose that also a currently not known auto immune disease is the root cause of the problem.

                  However it is clear that the problem is not a hashimoto or other kind of more known auto immune disease.

                  Blair Off topic: Yes you're right, I'm listening to metal mostly, and playing on V shaped pointy guitars 😃 I'm not in a band though.

                    Hello @Blair ,
                    some of your symptoms are very similar to my ones.
                    I have had eyes strain problem since 2013, near 2015 I began to notices discomfort with non-natural light and nervous tick/spasm (especially on right eye). I also had problems with trigeminal nerve that was injured 17 year ago. On summer of 2016 I became extremely sensitive even for natural light (strong dry eye syndrome) and on Autumn I got of bunch neurological problems, tinnitus and sleep problems.

                    I visited several ophthalmologist and neurologist. And in shortly I found one, that said very simple words:
                    "You have sitting job, don't do any additional physical exercices, don't walk enough. That causes my blood vessel to degraded. And have a lot of stresses that causes same for vessels."

                    After that I started to change my lifestyle.
                    I started with swimming (it was start of winter 2016/2017), its helps me a bit for a day or two.
                    With warm weather (end of winter 2017) i started to running, and it's add some freshness to my mind (with reliefe for several days).
                    In May I started riding on bicycle and suddenly in a month my eye dry problem significally decreased (but I have it in decreased state for a year from this moment).

                    At the end of 2017 summer I noticed that there is no further improvements in my state regardless of physical activity. And I began to experiment with relaxation practices (massage, yoga-nydra, R.E.S.E.T jaw therapy), yoga and breathe meditation. Maybe after a month of meditation I got some small improvements in my state. Further on one of R.E.S.E.T session I noticed some relief in head muscles (on right side) and start pay more attention for this area (head and neck). From that time I have noticed a lot of spontaneously activity in muscles (or maybe vessels) on my right head side.
                    But after that my practice become irregular for some time.

                    There should I also say that I tried to make some relaxation practices on winter 2016/2017, especially breathe meditation and yoga-nydra practice, but this practices were biased: sometimes I got better, but sometimes totally awful and I stopped do it for that time. I don't know how it could be explained, but maybe relaxation with bad blood vessels is not good idea. On Summer/Autumn 2017 my vessels became stonger.

                    At winter 2017/2018 I also noticed that long walks are also very helpful for my state (I walked about 10-15 km. and it was huge for me). Seems on summer 2018 my eyes spasm were ended.
                    On summer 2018 I passed formal meditation course and from that time I have practiced more regularly. And with practice I began to notice a lot of tension in my neck, especially on right side.
                    Seems from Summer/Autumn 2018 I became more robust for some led device/light (but not all).

                    Now I'm running, walking, meditating and riding on bicycle in warm weather. My state is much better that two years ago.

                    And as conclusion, try to pay attention for this areas and define how it suitable for you:
                    1. A lot of stress
                    2. Sitting job and restricted physical activity
                    3. Overtensioned head/neck/shoulders muscles

                    I'm not sure that this path is suited for you or anyone else. But if you want try you should find several physical activities that decreases your problem and start to do them more and more regularly from simplest phase to more complex. With time when you notice stopping in progress in your state it worth to switch to or add other ones.

                    @Blair Have you asked for an EEG while using a phone or computer? Could show abnormal activity that neurologists typically treat with drugs. I don't know if anticonvulsants would be at all helpful. I know you aren't keen on taking them (no one is) because of possible side effects, but some people tolerate the drugs well. Could be more beneficial than harm.

                      dev