ensete it's definitely an interesting effect, but I havent had access to one since I've been focused in on LEDs etc

MagnuM Perhaps avoidance isn't the best long-term strategy, but for a few years now,

This was my strategy for a long time, however now that auto manufacturers have been plastering LED's all over their cars, the problem is no longer avoidable. I've taken a more active role signign up for class action lawsuits, contact auto manufacturers, trying to get the NHTSA to acknowledge the problem, getting my senators involved, but i'm getting pretty much nowhere. But I'll keep fighting. It's criminal to use a technology that hurts people and deploy it on public roadways.

Do you know of glarminy website about light sensitivity?

Never saw that before, I'll check it out. I have visited techsensitve.com which has some info on this. Edit: Just bought the kit, why not give it a shot

I agree with @ensete now that the problem is probably color related.

Another thing to realize is that LED's are banged out in cheap Chinese foundries at the lowest possible cost. Things like flicker, accurate color reproduction, color temperature, none of that is considered, just shaving the price down to as few fractions of a penny as possible. Cheap LED's definitely cause me way more problems and unfortunately we live in a world where cheap rules everything else.

Let me know if the kit makes any difference to you. I am still testing but so far the result seems the same - number 7, which is only one I can use for color sensitive work, really seems to ease the pain. Its still somewhat annoying, might still have to look and focus elsewhere every once in a while, but it really seems to stop that main migraine and stinging headache I usually get from fully developing.

Uros who runs the site has a table of commercial filters corresponding with each number. Ordered them and will see how that goes.

degen What kind of doctor would you see for the jaw problem? I read in photophobia article on wikipedia that - Elevated trigeminal nerve tone (as it is sensory nerve to eye, elevated tone makes it over reactive). Elevated trigeminal tone causes elevated substance P which causes hypersensitivity. Often due to jaw misalignment.

Id like to see someone to try and get it fixed or aligned differently, but have no idea which specialist would do such thing.

    martin It's all over the place, ENT, Orthopedic surgeons, dentists, all have different solutions, and unless you have super amazing insurance (even here in Canada), it's going to cost, so, so much money.

    Currently my family doctor has sent me to a maxillofacial surgeon to evaluate surgical treatment for my stuck (left TMJ) and herniated (right TMJ) disks, which I have been waiting for an appointment for months. Likewise I have seen dentists who want me to wear appliances (different from bite guards as the purpose of these is to shift the jaws into a new position over a period of months/years).

    The commonality is they all want to do imaging that is not covered by anything I have and is very expensive, and random assessment fees (even from the MDs, not just the dentists) that you think would be covered by my government insurance, but nope.

    It's extremely frustrating getting help for TMJ disorders..

      degen Well, thats not very motivating. Ive set up a meeting with an acupuncture specialist, some tend to be very good at releasing certain muscle and nerve tension at fraction of the price of some medical specialists, so why not try.

      However I wanted to report here that I am more and more convinced that my problem is indeed bluelight related. I have tested the toughest filter number 0 from https://glarminy.com/blue-filter-tester/ and it seems to work perfect. Unusable for color accurate work, but it seems to get rid of 95% of the pain. The clear one number 7 helps too, but less, as its on the far end of filtering. I still get some slight irritation after very long use, but that might be the dither, PWM or other cause.

      Therefore my conlcusion so far is that I really do lack MPOD (macular pigment optical density) in my retina, and my retinas cannot filter out blue light. Apparently some LEDs on older iphones etc. were made differently, but newer LEDs have different additions and manufacture due to saving more battery life, so they might be more aggressive -

      "Today, many white LEDs are produced by pairing a blue LED with a lower-energy phosphor, thereby creating solid-state light (SSL).[3] This is often considered “the next generation of illumination”[3] as SSL technology dramatically reduces energy resource requirements." (https://en.wikipedia.org/wiki/Effects_of_blue_light_technology)

      I would recommend everyone to try the filtering glasses, as its the easiest option available I could find, compared to getting diagnosed for IRLEN syndrome, which seems similar but the centers are only in USA and UK, so for me a bit out of hand. I would love to hear if you have any help with those and if yes, which number.

      What I do not understand, is why apps like flux, iris or nightmode on iphone do nothing for me in easing the pain.

        martin Well it's not motivating but it's not sugar coated either.

        Yea I like acupuncture too. Works by releasing myofascial trigger points (the actual thing that causes chronic pain in our muscles and of course referred pain). It's even better if the practitioner realizes this because you can then direct them to the affected muscles and trigger points instead of them focusing on meridians (which are usually located at the position of some common trigger points anyway, guess that's what thousands of years of trial and error will get you).

        I get dry needling with an acupuncture needle between my eyeball and the orbital bone. Absolutely the best relief I have had but sometimes causes bruising. I've been told by a couple of ophthalmologists not to have it done because if the blood gets to the back of the eye it could put pressure on the optic nerve and damage my vision, but I still get it done despite those warnings and the bruising.

        Thanks for your report on the filters, I believe I am very sensitive to blue light and will order them as well and report.

        11 days later

        martin What I do not understand, is why apps like flux, iris or nightmode on iphone do nothing for me in easing the pain.

        Well, those apps don't eliminate blue light. They create an overlay, but your video driver is still sending a signal to the LED to output light, and the physical structure of the LED is set up to emit blue.

        I was on the blue light train, but I bought a pair of Blu Blocker sunglasses, and confirmed via a handheld spectroscope that they completely block all blue light (all the blue bands on the spectroscope were black) but they did not help my symptoms one iota.

        So it may be something else being emitted by that blue light emitter, not the blue light itself, which is the problem. Remember now that they are involving phosphors in LED's, that means the LED's are emitting UV light that is interacting with the phosphor to make visible light. This is how florescents and CFLs works, and there is a lot of UV leakage in that set up, as well as very, very poor CCRI and Color temperature reproduction.

        Thank you for the reply, its good to consider. I think for proper measurement you need a spectrometer that produces a spectrogram, and not only a spectroscope though. At least it would be amazing to be able to measure whether the displays that do not feel painful do emit very different wavelengths and whats their !intensity! than those that do. Or test as many displays as possible, to have comparison and see.

        In any case, regarding the blue light train, did you get your MPOD measured? I started another thread with this question. I know this problem is definately tech related, but there simply must be some measurebale difference between me and people who dont have any issues with this. For me, blue light blocking glasses seem to ease the pain, but mostly just postpone it - however I never had them covering my whole face, so reflected blue light or small amount getting around them could explain this.

          martin I've had the million dollar nuero optical exams, my eyes are fine. Remember, this is not an eye problem. It's a brain problem. You feel the strain in and around your eyes because your brain in misinterpreting some signal and telling the muscles around your eyes and head to misbehave, cause pain.

            I am 40, and first noticed symptoms in about 2010. for me it is very obvious when I am being affected; I can tell within a few seconds. There have been devices that have been consistently ok, but most seem to go in phases. When I first noticed it, it was on my work laptop. I noticed by accident that if I un-docked the device that I could see clearly with no problem. I made the connection that the problem only existed when I was connected to the Internet. The next PC I had issues with was not a laptop, but the feeling of not being able to focus my eyes, and a kind of sinus pressure feeling was unmistakably familiar. For a while, I could unplug the Ethernet cable and everything would be instantly fine. After some time, unplugging the Ethernet cable did not work anymore, and my “brain fog” “anxiety” “morning sinus headaches” became too much to deal with and I resigned. I was able to use my home computer without issue for a year until I got another job, then after some time… same symptoms.
            My eyes sort of “wash out” I cant focus them on the text. I get a sinus pressure feeling, my heart races, that night I wake up all night long, then the next day sinus headache. I know it does not sound like a technological problem BUT IT IS! The onset of the symptoms is as pronounced and predictable to me as watching a movie i’v seen a hundred times. it's like groundhog day.

            The next job I got I was allowed to work from home. If I went into the office with my laptop… Always vision issues. If I worked from home always fine, with the same laptop. Then I started having trouble when using the VM a client Had provided. Non-of my tricks worked on that machine and the symptoms got bad. Very acute anxiety. Strobing peripheral vision progressing to full on visual snow. Terrible brain fog, dementia like symptoms, all culminating in a sort of psychotic episode (I have no personal or family history of mental illness.)

            I have a number of tricks that work most of the time… but to play it safe I am solely using a Dasung Paperlike for the time being, and it is great! I always feel uneasy that my set up will not maintain protection, so with this I believe the technology is incapable of causing me harm because it emits no light.

            There is lots more I am choosing not to say. <cough><cough>

            As for the medical reason-- I assert that this is a TECHNOLOGY problem, but I may be more sensitive to it either because of a history of concussions when I was a kid or because of stress. I have had the issues in the absence of stress though, so I know it is ,in essence, technological and not medical in nature. there has been near perfect correlation between my symptoms and use of certain devices over an 8 year span. never an issue with dvds or movies or anything like that.

            I am thankful this site exists! I have gotten too many razed eyebrow blow offs from the medical community.

              ShivaWind I am sorry to read that. Its good you figured out how to navigate modern life. However I still believe its a combination of both - tech and health. Otherwise there is no way how some people can use the devices I cannot without problems. Its simply "bad" tech combined with some health/body difference compared to other people who do not have the issue. Looking for a thing that answers both questions at the same time:

              What is different with modern tech compared to the old one I can use? (pwm, dithering, blue light...)
              What is different with me compared to other people who do not have this issue? (eyes, brain, sensitivity...)

              Can help find solution to the problem I believe. I wrote down a list of things Im going to go through one by one, until I either run out of ideas or find the common denominator. It will require some medical testing, and also tech testing with advanced tech that I might need to visit some university or work places to use.

              Also the common denominator might be different for everyone, so I do not think we can find a universal answer here, although it would be nice. Im afraid everyone will have to find that common denominator for themselves.

              ensete I understand. But I think if the doctors do not know what to look for exactly, they are as good as blind no matter how much money their technology cost. We have different health system here and my friend who is a doctor suggested she could perform some scans on me. However said that since she has no idea what to look for, the radiation Id get during that exam is not worth it.

              Individual alpha peak frequency predicts 10 Hz flicker effects on selective attention
              Rasa Gulbinaite, Tara van Viegen, Martijn Wieling, Michael X Cohen and Rufin VanRullen
              Journal of Neuroscience 20 September 2017, 1163-17; DOI: https://doi.org/10.1523/JNEUROSCI.1163-17.2017

              SIGNIFICANCE STATEMENT

              Here we provide novel evidence that the interaction between exogenous rhythmic visual stimulation and endogenous brain rhythms can have frequency-specific behavioral effects. We show that alpha-band (10 Hz) flicker impairs stimulus processing in a selective attention task when the stimulus flicker rate matches individual alpha peak frequency. The effect of sensory flicker on task performance was stronger when selective attention demands were high, and was stronger during stimulus processing and response selection compared to the pre-stimulus anticipatory period. These findings provide novel evidence that frequency-specific sensory flicker affects online attentional processing, and also demonstrate that the correspondence between exogenous and endogenous rhythms is an overlooked prerequisite when testing for frequency-specific cognitive effects of flicker.

              http://jov.arvojournals.org/article.aspx?articleid=2138193&resultClick=1
              http://jov.arvojournals.org/article.aspx?articleid=2138193
              http://jov.arvojournals.org/article.aspx?articleid=2139679&resultClick=1
              http://passthrough.fw-notify.net/download/937894/http://eprints.gla.ac.uk/120028/1/120028.pdf

              I imagine 10 Hz flicker would be very jarring, to anyone.

              it looks like 10hz is about as low as you can go and still have it be invisible (see below). There are several other studies that look at the effects in the Gamma band >30hz. I posted that particular study because it pointed out that the frequency needs to be phase matched to the individuals brain rhythm (maybe a reason why others can use the equipment that effects us without issue)

              Critical flicker-fusion frequency as an indicator of human receptive field-like properties.
              Campos EC, Bedell HE.
              Abstract

              A psychophysical function, believed to reflect receptive field-like properties, is described. It is based on the determination of the critical flicker fusion frequency (CFF) of a tiny test target, centered on a round background of fixed luminance, the size of which is varied as the test parameter. Under optimal conditions, the maximal obtained frequency difference is 10 Hz. This function is compared with the so-called sustained-like function, with which it has some common aspects. Additionally, a portion of the flicker-based function apparently derives from a non-sustained-like source.

                Well thats certainly good news! reading these studies with the research objective of altering brain function, mood, and affect via retinal stimulation using oscillating luminescence had me a little concerned. It's good to hear that EFF is >60, that means this would not be possible with a computer monitor without the subject becoming aware of it. The alternative would not be ideal.

                7 days later

                Hey,

                as I told you I've started the special TMJ therapy at my new orthodondist . She is very competent and always tells me about patients with chronically sinusitis, tinnitus and light sensitivity which no ENT or eye doctor can diagnoze and heal.

                However by bringing the lower jaw in the "right" position most of the weird symptoms of many patients of her disappear. Moreover I have to say that her proceeding is out of standard medical science and therefore it makes no sense to go to a standard orthodondist - many doctors told me that everything is ok, but as you know, it isn't.

                She works with a splint called aqualizer which helps the muscles to relax and brings the lower jaw into a better position. With that help she is grinding away some dental enamel which is in the way for the right lower jaw position. Her theory is that some people like me are not able to grind their own teeth right, because of steep canines etc. - also called eyeteeth - think about why this teeth have this name.

                Some more information you can find there.
                http://www.aqualizer.com/html/aqualizer.htm (however I think that there is more and better information at the german website)

                  dev