premedwidow I totally understand not having time, especially if it involves screens. As far as reporting goes, if you ever do have a little time, your experience could be very helpful to share with the FDA - they need our injury reports to know there's a problem and to justify starting to take action and hopefully eventually develop safety regulations. Each of us seems to have a somewhat unique story in terms of symptoms, even though there's also a lot of overlap among us, so I think it's important that the FDA hears from as many unique voices as possible, and your story is compelling.
I've been trying to convince the FDA that their current reporting process is too hard for us and doesn't garner very useful information and have suggested they allow phone reporting, but no luck so far. Perhaps if you emailed them the link to this thread, that could suffice to share your symptoms and experience. Their official form is Accidental Radiation Occurrence form 3649 and you can basically say "see attached" for all of the non-useful specific questions and then attach your story. It can be sent in by snail mail or emailed to RadHealthCustomerService@fda.hhs.gov. The FDA Office of Radiological Health is probably our only hope for getting safety standards eventually. They'll also assign you a case number, which could be useful to reference in some of your other legal strategies. I've also spoken with them on the phone and know others have too after requesting this.
I really hope you're able to obtain safe access to an education! It seems like we're in a limbo area since the wold assumes lights/screens are safe and can't possibly cause injury. We should have the right not to be forced to undergo injury that that create severe disability. If I haven't been injured by lights/sceens, I have no disability, so have no protection from harm in the current system. Even the medical system is excluding me from safe care.
If you're researching the molecular biology that might underlie flicker sensitivity, iPRCGs are a candidate (I read a lot about them, but it's not totally convincing to me that they explain everything), but it's also possible that light-absorbing proteins or other molecules targeted in photobiomodulation therapy (not necessarily restricted to the known visual system) could also be targets - either ameliorating effects or triggering symptoms. Unfortunately, that field has been too sparsely explored to date to provide more than hints of possible targets, but they've found that the dose, wavelength of light, and whether/how the light is pulsed matters for creating biological responses. Minutes of light can trigger over a month of effects, suggesting signalling that could trigger changes in gene expression. That's consistent with how long I'm affected after an injury - often weeks to months. There's research on brief treatments with red and near-IR light being anti-inflammatory and helping to reduce mTBI symptoms. There are the most papers about this and the target proteins/pathways have been fairly well studied. There are different protein receptors that could be targets of blue or green light in photobiolodulation therapy in a family that includes touch and pain receptors, but this has very little study so far. I link to some reviews on photobiomodulation here. I wonder if the high near-IR/red light contributes to why I can tolerate incandescent light flicker much better than LED flicker. It's pure speculation, but I wonder if pulsed light might be triggering signalling from a touch/pain receptor in the brain that initiates an inflammatory response. My most common and persistent symptom is a feeling of pressure/swelling in my right temple. I also know from my testing that color-to-color flicker is a lot worse for me than flicker without sequential color change. I know sequential color flicker can be bad for people with epilepsy (like in the Pokemon cartoon incident in Japan), but I don't happen to know anything about the underlying molecular mechanism of that. A lot of LEDs seem to have sequential color flicker.
